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CHD-NI (Congenital Heart Defects, Northern Ireland)
- Aims to raise awareness of Congenital Heart defects, and provide information and support; includes a library of resources, with details of their support network and forum, newsletters, and membership.
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CHD-UK
- A GUCH (Grown up with Congenital Heart Defect) provides a library of information about conditions, treatments, and personal stories.
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Ebstein's Society
- A support group for both medics and those affected by Ebsteins Anomaly; includes information resources, information about research and treatments, discussion forums, and how to support.
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GUCH (Grown Up Congenital Heart) Patients' Association
- Supports young people and adults with congenital heart disease and conditions; provides information and advice resources, a list of recognised treatment centres in England, message board, and ideas on how to support financially or as a volunteer.
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Prenatal Diagnosis of Congenital Heart Disease
- Personal website of Dr Simpson, Consultant in Fetal and Paediatric Cardiology at the Evelina Children's Hospital, London; provides information about prenatal detection of heart defects, a list of support groups, and details of the hospitals resources and training.
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Tiny Tickers
- Works to improve the way that congenital heart disease is detected, diagnosed and managed. Includes details of their fundraising, training and awareness-raising programmes, and contacts.
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