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BackCare
- National charity working to reduce the impact of back pain on society by providing information, support, promoting good practice and funding research. Includes resources for patients, professionals, and employers, with details of campaigns, news, and local branches.
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The Bone Health Centre
- Based at the Princess Grace Hospital in London, and offering a multidisciplinary approach to the diagnosis and management of disorders associated with bone.
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Brittle Bone Society
- UK wide organisation providing support to people affected by the bone condition Osteogenesis Imperfecta (OI); provides information resources for parents and schools, news and events, a forum, and contacts.
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Ehlers-Danlos Support Group
- A support group for sufferers, with a library of resources about the condition, message board, area contacts, and fundraising events.
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Fractures of the Wrist
- An orthopaedic surgeon specialising in wrist injuries. Offers patient information, treatments and explains the common problems.
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Hereditary Multiple Exostoses Support Group
- Offering support and advice to families affected by hereditary multiple exostoses; a rare medical condition in which multiple bony spurs or lumps develop on the bones of a child.
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Hypermobility Syndrome Association (HMSA)
- A charity run by and for people diagnosed with the syndrome; includes information resources, a forum, and advice, with specialist sections for professionals and young people.
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The Ilizarov & External Fixator Wearer's Support Group
- Maintains a library of information, resources, and advice for people undergoing orthopaedic correction by Ilizarov fixator, or expecting to do so.
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King’s College Hospital Limb Reconstruction Trust (KCHLRT)
- A charity founded to support patients of the hospital's limb reconstruction unit, and increase awareness about disability; includes information about procedures, news and events, and contacts.
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Myositis Support Group
- Offers a wealth of information, support and resources for patients with the connective tissue disorders dermatomyositis, polymyositis, inclusion body myositis and juvenile dermatomyositis.
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National Back Exchange
- A multidisciplinary group for those with an interest in backcare and prevention of work-related musculoskeletal problems. Includes details of membership, resources, news and events, and contacts.
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Osteopetrosis Support Trust
- Provides information mostly for families affected by the severe form of the disease called Malignant infantile osteopetrosis; also includes information about other forms.
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The Paget’s Association
- Offers support and information to those with Paget’s disease, and works to raise awareness of the condition, and sponsor research into its causes and treatment; with information resources, details of membership, news, and how to support their fundraising.
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Perthes Association
- Provides support and advice to families of children suffering from Perthes disease and associated conditions.
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The Poland Syndrome Support Group
- Formed to offer support and advice to anyone with Poland Syndrome, their families and friends. Includes information about their activities and about the condition.
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Steps
- A national charity supporting children and adults affected by a lower limb condition such as clubfoot or a hip condition. Provides information about their helpline and support, research, and a library of resources and case histories.
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Strongbones Children's Charitable Trust
- Aims to support children living with scoliosis, brittle bone disease, arthritis and all other conditions of the bone. Includes information on grants and current appeals, as well as personal stories from some of the children the charity has helped.
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Trauma Brachial Plexus Injury (TBPI) Group
- Provides information and support to adults coping with a TBPI; with resources, contacts, and message boards.
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UK Gout Society
- Offers gout information and downloads plus links offering support and advice.
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