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CJD Alliance
- An independent organisation involved in research into TSE's (Transmissible Spongiform Encephalopathies) such as CJD, their diagnosis and treatment.
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CJD Support Network
- A patient support group providing help for people with all strains of Creutzfeldt-Jakob disease, and their carers/families. Includes a library of clearly written resources, with details of meetings and how they can help, and how to support their efforts.
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MRC Prion Unit
- A centre of research into prion and related neurodegenerative diseases; provides a guide to their research activities and clinical services, with news and contacts.
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The National Creutzfeldt-Jakob Disease Surveillance Unit (NCJDSU)
- Established to monitor incidence of the condition in the UK; includes statistics, information on variant CJD (vCJD), research, and useful links.
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The vCJD Trust
- Official site for the scheme set up to provide compensation to victims of variant Cruetzfeldt Jakob Disease (vCJD) and their families.
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