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Addison's Disease Self Help Group
- Resource for sufferers of this rare condition involving failure of the adrenal glands. Includes "owner's manual", forum, newsletters and information for medical professionals.
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Agoraphobia-support.co.uk
- Agoraphobia support network offering stories, statistics, advice and self help.
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ALD Life
- Aims to help all affected by or interested in adrenoleukodystrophy and adrenomyeloneuropathy, whether personally or medically. Includes research news and resources.
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Arthritis Care
- Provides information and facts about arthritis with downloads, online forum and a telephone helpline.
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Association for Spina Bifida and Hydrocephalus
- Supports families and individuals affected by spina bifida and hydrocephalus. Includes a telephone support and helpline.
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COvictim
- Registered charity that supports the many victims of Carbon Monoxide poisoning and other products of combustion, their families and friends.
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Down's Heart Group
- One to one support and a telephone helpine for parents with a child with Down's syndrome. Includes online stories and related links.
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DSSG Online
- Down's syndrome support group for the areas of Rugby and Coventry. Offers telephone contact for support with links and an overview of Down's syndrome.
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The Fragile X Society
- Registered charity providing support, information and friendship to families whose children and relatives have fragile X syndrome.
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Goldenhar Family Support Group (UK)
- Network for families with children diagnosed with Goldenhar syndrome. Includes a member's area, information about family days and details of how to join.
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Intensive Care Unit Support Teams for Ex-Patients (ICUsteps)
- Supports patients and their families through the long road to recovery from critical illness; provides a guide to intensive care, with resources for patients and professionals, contacts, and details of local groups.
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Leukemia Care
- Caring for those affected by leukaemia, lymphoma and allied blood disorders. Provides information on the local volunteer network as well as downloadable booklets and patient advocacy services.
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The National Society for Epilepsy
- A registered charity offering an overview of epilepsy an online forum and a telephone helpline.
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Netdoctor.co.uk: Support Groups
- A comprehensive A-Z of UK support groups supplied by Netdoctor.
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Parkinson's UK
- Online information and resources with stories, publications and a telephone helpline.
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Prader-Willi Syndrome Association (UK)
- Provides personal stories, plus information for families, parents and sufferers of this syndrome as well as for medical professionals.
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Spinal Injuries Association
- Spinal injury publications and a telephone helpline for newly injured people plus details of how to rebuild your life after injury.
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The Stroke Association
- Offers information leaflet downloads with research details, stroke news and a list of clubs and support groups located within the UK.
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UK Adhesions Society
- Includes a discussion list, treatment information and details of an appeal fund.
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UK Self-Help
- A comprehensive A-Z list of UK support groups for a range of conditions.
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Worster-Drought Syndrome Support Grup
- Featuring news, articles and newsletters in support of those suffering from this condition, a form of cerebral palsy.
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