Conditions and Diseases Congenital Anomalies in the Best of the Web UK Directory

Conditions and Diseases Congenital Anomalies

Anorchidism Support Group

A support group for families affected by this are congenital condition, in which boys are born without testes; includes information about causes and treatments, details of their activities, and contacts.

The Arthrogryposis Group

Provides a guide to their support and information services for people and families affected by the condition, with news and events, and how to get involved.

Bladder Exstrophy Family Association

Aims to provide reliable and balance information to people and families affected by bladder or cloacal exstrophy and epispadias. Includes resources, FAQ, news, and a forum.

CDH UK

Provides support, information and advice on CDH by sharing experiences, providing news and information, raising awareness and working together with families and medical professionals to improve treatments and to further research.

Cleft Lip and Palate Association

Offers medical information, a forum and support for families affected by cleft lip and palate.

Face Forward

Provides support and companionship forums for people with or parents of children with cleft lip and palate.

GEEPS

The Gastroschisis Exomphalos Extrophies Parents Support Network (GEEPS) supports families and friends of children born with abdominal abnormalities; includes information and advice about the conditions and their treatment, and a forum.

Headlines

Craniofacial support group offering help and advice to families affected by craniofacial issues, particularly conditions associated with craniosynostosis.

Headstart4Babies

Aims to raise awareness of plagiocephaly and brachycephaly. Includes information on diagnosis and treatment, plus a selection of success stories.

Klinefelter's Syndrome Association (KSA)

Provides information about a common condition caused by the presence of one or more additional 'X' chromosomes; also includes information about their support activities, conferences, and contacts.

Restricted Growth Association

UK charity offering advice and support to people affected by restricted growth or dwarfism and their families. Contains medical information and sections for adults, parents and young members.

The Restricted Growth Association

A registered charity that provides information and support to people of restricted growth and their families.

The Thalidomide Society

Supports adult thalidomide-impaired members and their families. With resources and contacts.

Thalidomide Trust

Provides relief and assistance for those people born damaged as a result of their mothers having taken the drug Thalidomide during their pregnancy.

Vascular Birthmark Foundation

Supports families affected by vascular birthmarks, hemangiomas, port wine stains, Sturge-Weber Syndrome, Klippel Trenaunay Syndrome and other vascular malformations.

Walking with Giants Foundation

Charity supporting families affected by a number of subtypes of Primordial Dwarfism. Profiles some of the families and children concerned and contains background information on the condition.

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