Barrett's Oesophagus Campaign
Maintains a register of Barrett's Oesophagus sufferers and provides help and support to families involved. Includes FAQ and information for health professionals.
An open source crowd funded project run by The Department of Twin Research at King’s College London in conjunction with The American Gut project. The aim is to uncover the microbial content within the guts of British individuals.
The British Hernia Centre
Provides information resources about the different types of hernia, how they happen, and treatment options.
CICRA (Crohn's in Childhood ResearchAssociation)
Dedicated to creating a wider understanding of inflammatory bowel disease (IBD), particularly as it affects children and young adults. Includes information resources, details of their research grants, and contacts.
Charity which focuses on digestive and liver diseases. Includes news and downloadable patient information leaflets on a wide range of conditions.
Resource for the management and treatment of Crohn’s Disease and other Inflammatory Bowel Diseases designed to help both patients and healthcare professionals.
Galactosaemia Support Group
Offers information on this rare, inherited, metabolic disease which is caused by the deficiency of the enzyme galactose-1-phosphate uridyl transferase. Includes event details, galactosaemia register and dietary advice.
The IBS Network
Supports people living with Irritable Bowel Syndrome; provides information about the condition and managing it, details of local groups, advice resources, and their helpline.
Sharing personal stories of irritable bowel system in the UK.
Living with Reflux
Set up by sufferers to support families with Gastro-Oesophageal Reflux (GOR), Gastro-Oesophageal Reflux Disease (GORD), and associated conditions; includes information resources for patients and professionals, and contacts.
Making It Better - The Daniel Courtney Trust
Charity set up in memory of Daniel, who suffered from microvillous atrophy, a rare bowel disorder. Contains information on the condition, details of current and past fundraising events and photographs of Daniel.
National Reyes Syndrome Foundation UK
Supports research into the treatment care and prevention of Reye's syndrome and similar illnesses; also provides information and support for parents whose children have suffered from these diseases.
Oesophageal Patients Association
Association for patients who have experienced oesophageal or gastric difficulties. Details the support available, including a helpline.
Pancreatitis Supporters' Network
Provides medical information and support for sufferers of the condition, with advice for sufferers and carers, a discussion board and a pen pals network.
PUMPA – Purine Metabolic Patients’ Association
Provides information and support, and encourages research into purine and pyrimidine disorders. Includes resources about living with these disorders and associated conditions, for patients, parents and professionals.
Society for Mucopolysaccharide Diseases (MPS)
A support group for children and adults suffering from these and related conditions, their families and carers, and professionals; includes information about MPS and Fabry Disease, details of membership and activities, and contacts.