Digestion and Nutrition Disorders in the Best of the Web UK Directory

Digestion and Nutrition Disorders

Association for Glycogen Storage Disease UK

Explains the different types of glycogen storage disease and provides information and support for patients and their families.

Barrett's Oesophagus Campaign

Maintains a register of Barrett's Oesophagus sufferers and provides help and support to families involved. Includes FAQ and information for health professionals.

British Gut

An open source crowd funded project run by The Department of Twin Research at King’s College London in conjunction with The American Gut project. The aim is to uncover the microbial content within the guts of British individuals.

The British Hernia Centre

Provides information resources about the different types of hernia, how they happen, and treatment options.

CICRA (Crohn's in Childhood ResearchAssociation)

Dedicated to creating a wider understanding of inflammatory bowel disease (IBD), particularly as it affects children and young adults. Includes information resources, details of their research grants, and contacts.

Core

Charity which focuses on digestive and liver diseases. Includes news and downloadable patient information leaflets on a wide range of conditions.

Crohn's and Colitis UK

UK’s leading charity in the battle against Crohn’s Disease and Ulcerative Colitis. https://www.facebook.com/crohnsandcolitisuk

Crohns.org.uk

Resource for the management and treatment of Crohn’s Disease and other Inflammatory Bowel Diseases designed to help both patients and healthcare professionals.

Galactosaemia Support Group

Offers information on this rare, inherited, metabolic disease which is caused by the deficiency of the enzyme galactose-1-phosphate uridyl transferase. Includes event details, galactosaemia register and dietary advice.

The IBS Network

Supports people living with Irritable Bowel Syndrome; provides information about the condition and managing it, details of local groups, advice resources, and their helpline.

IBS Tales

Sharing personal stories of irritable bowel system in the UK.

The Irritable Bowel Syndrome Self Help and Support Group

A national patient led and patient governed organisation dedicated to helping everyone who suffers from IBS and other digestive health disorders.

Living with Reflux

Set up by sufferers to support families with Gastro-Oesophageal Reflux (GOR), Gastro-Oesophageal Reflux Disease (GORD), and associated conditions; includes information resources for patients and professionals, and contacts.

Making It Better - The Daniel Courtney Trust

Charity set up in memory of Daniel, who suffered from microvillous atrophy, a rare bowel disorder. Contains information on the condition, details of current and past fundraising events and photographs of Daniel.

The National Association for Colitis and Crohn’s Disease (NACC)

Provides support and information for people who have Ulcerative Colitis or Crohn’s Disease and their families; includes online resources, details of local groups, research programme, news, and contacts.

The National Information Centre for Metabolic Diseases

Organisation to provide information and support on all metabolic diseases to children, adults, families, carers and professionals. Contains events diary, forum, newsletter and resources.

National Reyes Syndrome Foundation UK

Supports research into the treatment care and prevention of Reye's syndrome and similar illnesses; also provides information and support for parents whose children have suffered from these diseases.

Oesophageal Patients Association

Association for patients who have experienced oesophageal or gastric difficulties. Details the support available, including a helpline.

Pancreatitis Supporters' Network

Provides medical information and support for sufferers of the condition, with advice for sufferers and carers, a discussion board and a pen pals network.

PINNT - Patients on Intravenous and Nasogastric Nutrition Therapy

Provides information, advice, and support for adult patients, and for the parents and carers of paediatric patients being fed by tube. With contacts, FAQ, local groups, newsletter, and forum.

PUMPA – Purine Metabolic Patients’ Association

Provides information and support, and encourages research into purine and pyrimidine disorders. Includes resources about living with these disorders and associated conditions, for patients, parents and professionals.

Society for Mucopolysaccharide Diseases (MPS)

A support group for children and adults suffering from these and related conditions, their families and carers, and professionals; includes information about MPS and Fabry Disease, details of membership and activities, and contacts.

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