The Ann Conroy Trust (ACT)
Provides information and support to sufferers from Syringomyelia and associated disorders, and funds research into the condition; includes information, newsletter, details of services, and contacts.
A sufferer from the condition provides information, hints and tips, and links to help others.
A national charity supporting research into Ataxia-Telangiectasia, and supporting families affected by A-T through two specialist clinics. Includes a guide to the condition and to living with it, information for professionals, news and contacts.
Supports research into the causes of ataxia and development of treatments. Also provides services for patients, families, and carers; includes news, events, and information resources.
BASIC - Brain and Spinal Injury Centre
Provides counselling, information and support services for patients and their families following a brain or spinal injury. Includes details of their national network of centres, services, and information resources.
The Brain and Spine Foundation
Offers research, education and information programmes for people affected by brain and spine disorders. Includes helpline contacts.
British Acoustic Neuroma Association
Offering support and advice to those suffering from this kind of brain tumour, and their families. With articles, membership area and information about the condition.
British Trust for The Myelin Project
UK branch of an international charity which funds research into demyelinating diseases, including Multiple Sclerosis (MS) and Leukodystrophies. Includes information sources, with a guide to how to help.
The Children’s Mitochondrial Disease Network
Formed to support parents of children suffering from Mitochondrial and associated disorders, and professionals working with them; includes background on the condition, links to further resources, and information about membership and fundraising.
CMT United Kingdom
A charity supporting those affected by Charcot-Marie-Tooth Disease. Includes an overview of the condition, how to get help plus news.
Non profit support group caring for those who have ACC or Aicardi Syndrome. Includes newsletter and information about the condition.
Charity with the specific aim of raising money to fund and facilitate research into finding a cure for Parkinson’s.
Dancing Eye Syndrome Support Trust
Aims to raise funds and offer support to families of children with this syndrome, the full name of which is opsoclonus myoclonus syndrome, and which is characterised by jerky eye and limb movements.
David Lewis Centre
Provider of a range of medical, educational, residential and assessment services for people with complex epilepsy and other neurological conditions, including learning disability and challenging behaviour.
Dysautonomia Society of Great Britain (DSGB)
British chapter of the Dysautonomia Foundation of the USA; provides information and support to sufferers of this genetic condition that causes dysfunction of the autonomic and sensory nervous systems.
Erb's Palsy Group
Offers advice and information on the injury Erb's Palsy/Obstetrical Brachial Plexus Paralysis, which is mainly caused by birth trauma. Includes event listings and information on their young achiever awards.
Fibromyalgia Association UK
Aims to raise awareness of the condition and provide support to suffers; includes information and advice, and a nationwide listing of local groups.
Guillain-Barré Syndrome Support Group
Offers support and information to those affected by Guillain-Barré syndrome, CIDP and other dysimmune neuropathies in Britain and Ireland; includes resources, a forum, and a section for health professionals.
Charity that works to improve life after brain injury. Provides information, support and services to people affected by brain injury, their family and carers.
Provides information resources about hemiplegia and hemiparesis (particularly related to children and young people), a FAQ, details of their services, and contacts, with sections dedicated to young people themselves and professionals.
Describes the symptoms and treatment options available for this perception disorder.
Magnopulse International Ltd
Provides information and resources to help circulation problems in a range of neurological disorders including restless leg syndrome (RLS), cramp, gout and carpal tunnel. Site offers articles, ailment details and how to get relief.
Moebius Research Trust
Dedicated to raising awareness of, and supporting research into the rare congenital neurological disorder; includes information, events and fundraising, and contacts.
Multiple System Atrophy Trust
Provides an information bank for people affected by this degenerative neurological disorder, their families and carers, and for professionals; also supports research into the condition.
Myotonic Dystrophy Support Group
Offering information and support to those dealing with this chronic, slowly progressing, highly variable inherited multisystemic disease.
Social network and online support group for those living with Parkinson's.
National Tremor Foundation
Aims to offer support to all those living with tremors, irrespective of age. Includes publications list and information on fundraising.
Contains background information on neurofibromatosis and offers details of their network of support for those with this genetic condition. Also provides downloadable information sheets and information on special events.
Provides information and support to people affected by Peripheral Neuropathy (PN) and Neuropathic Pain (NeP); provides a library of resources, forum, and an "ask-the-expert" feature.
Supporting people with a wide range of neurological disorders. Includes newsletters, details of the various services provided, information on how to volunteer and an A-Z of neurological conditions.
Northern Neurological Alliance
Works with a range of brain and spine charities, networks and forums to campaign locally and nationally for better services for people with neurological conditions.
The UK National Neuromuscular Database has been developed to facilitate research, audit and standardised clinical assessment of patients with neuromuscular disorders in the UK and to lead and contribute to national and international initiatives in the field of neuromuscular conditions.
Organisation for Anti Convulsant Syndromes
Supports families of babies born with a variety of problems known as Fetal Anti-Convulsant Syndrome, believed to be caused during the first trimester of pregnancy, when a mother to be takes anti convulsant drugs to help control seizures.
Organisation for the Understanding of Cluster Headaches; offers background information on cluster headaches, plus news, forum and details of the organisation's helpline.
Offers advice and support for people with Parkinson's, their carers and families, through a network of local groups; also supports research into the condition. Includes resources and news, and a section for professionals.
Provides support and information about this rare neurological disorder affecting mainly female children for their families and carers, and for professionals.
Royal Hospital for Neuro-disability
Putney based hospital caring for patients with profound neurodisabilities; includes information for patients and carers, and details of research and how to support the hospital.
Provides information, advice and support, and specialist services for individuals affected by Spina Bifida and Hydrocephalus and their families.
Sturge-Weber Foundation UK
A voluntary support group for families and adult sufferers affected by Sturge-Weber syndrome; provides information and resources, personal accounts, and details of a specialist clinic in Great Ormond Street Hospital.
UK Synaesthesia Association
Formed to bring scientists, researchers, students and synaesthetes together and provide information regarding the condition. Provides a library of resources and details of membership and activities.
Yorkshire Brain Research Centre
Part of the Leeds Teaching Hospitals Charitable Foundation. Working for better diagnosis, better treatment and better outcomes for patients with brain conditions.