Health Support Groups in the Best of the Web UK Directory

Health Support Groups

Addison's Disease Self Help Group

Resource for sufferers of this rare condition involving failure of the adrenal glands. Includes "owner's manual", forum, newsletters and information for medical professionals. https://www.facebook.com/addisons.org.uk

ALD Life

Aims to help all affected by or interested in adrenoleukodystrophy and adrenomyeloneuropathy, whether personally or medically. Includes research news and resources. https://www.facebook.com/ALDLife ALDLife

Arthritis Care

Provides information and facts about arthritis with downloads, online forum and a telephone helpline.

Association for Spina Bifida and Hydrocephalus

Supports families and individuals affected by spina bifida and hydrocephalus. Includes a telephone support and helpline.

Beat

A guide to anyone affected by eating disorders, giving individuals and their loved ones a place where they feel listened to, supported and empowered.

Down's Heart Group

One to one support and a telephone helpine for parents with a child with Down's syndrome. Includes online stories and related links.

The Five Percenters

Offers support and information to those accused of shaken baby syndrome.

The Fragile X Society

Registered charity providing support, information and friendship to families whose children and relatives have fragile X syndrome.

Goldenhar Family Support Group (UK)

Network for families with children diagnosed with Goldenhar syndrome. Includes a member's area, information about family days and details of how to join.

Health Unlocked

Digital health platform which allows patients to connect with others experiencing the same conditions. http://www.facebook.com/healthunlocked healthunlocked http://www.linkedin.com/company/healthunlocked/

Hope Support Services

Supports young people when a close family member is diagnosed with a life-threatening illness. Online and face-to-face help is available.

Intensive Care Unit Support Teams for Ex-Patients (ICUsteps)

Supports patients and their families through the long road to recovery from critical illness; provides a guide to intensive care, with resources for patients and professionals, contacts, and details of local groups.

Leukemia Care

Caring for those affected by leukaemia, lymphoma and allied blood disorders. Provides information on the local volunteer network as well as downloadable booklets and patient advocacy services.

The National Society for Epilepsy

A registered charity offering an overview of epilepsy an online forum and a telephone helpline.

Netdoctor.co.uk: Support Groups

A comprehensive A-Z of UK support groups supplied by Netdoctor.

Parkinson's UK

Online information and resources with stories, publications and a telephone helpline.

Prader-Willi Syndrome Association (UK)

Provides personal stories, plus information for families, parents and sufferers of this syndrome as well as for medical professionals.

Rethink Mental Illness

One of the UK's largest mental health advice and support groups providing a range of online information as well as telephone helplines. https://www.facebook.com/RethinkCharity Rethink_ http://www.linkedin.com/company/rethink-mental-illness

Rethinking Health

Social enterprise providing quality training, research and information to allow informed choices about health-care and recovery.

The Scottish Spina Bifida Association

The only Scottish charity dedicated to providing support, information and advice on all aspects of spina bifida and hydrocephalus. SpinaBifidaScot

Self Management UK

Self management support for people living with long-term health conditions. https://www.facebook.com/selfmanagementuk/ SelfManageUK http://www.linkedin.com/company/self-management-uk

Spinal Injuries Association

Spinal injury publications and a telephone helpline for newly injured people plus details of how to rebuild your life after injury.

The Stroke Association

Offers information leaflet downloads with research details, stroke news and a list of clubs and support groups located within the UK.

UK Self-Help

A comprehensive A-Z list of UK support groups for a range of conditions.

Worster-Drought Syndrome Support Grup

Featuring news, articles and newsletters in support of those suffering from this condition, a form of cerebral palsy.

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