Addison's Disease Self Help Group
Resource for sufferers of this rare condition involving failure of the adrenal glands. Includes "owner's manual", forum, newsletters and information for medical professionals.
Aims to help all affected by or interested in adrenoleukodystrophy and adrenomyeloneuropathy, whether personally or medically. Includes research news and resources.
Provides information and facts about arthritis with downloads, online forum and a telephone helpline.
Down's Heart Group
One to one support and a telephone helpine for parents with a child with Down's syndrome. Includes online stories and related links.
The Fragile X Society
Registered charity providing support, information and friendship to families whose children and relatives have fragile X syndrome.
Goldenhar Family Support Group (UK)
Network for families with children diagnosed with Goldenhar syndrome. Includes a member's area, information about family days and details of how to join.
Digital health platform which allows patients to connect with others experiencing the same conditions.
Hope Support Services
Supports young people when a close family member is diagnosed with a life-threatening illness. Online and face-to-face help is available.
Caring for those affected by leukaemia, lymphoma and allied blood disorders. Provides information on the local volunteer network as well as downloadable booklets and patient advocacy services.
Mobility Advice Line
Registered charity providing telephone advice on mobility and disability matters.
Online information and resources with stories, publications and a telephone helpline.
Rethink Mental Illness
One of the UK's largest mental health advice and support groups providing a range of online information as well as telephone helplines.
Social enterprise providing quality training, research and information to allow informed choices about health-care and recovery.
Self Management UK
Self management support for people living with long-term health conditions.
Spinal Injuries Association
Spinal injury publications and a telephone helpline for newly injured people plus details of how to rebuild your life after injury.
The Stroke Association
Offers information leaflet downloads with research details, stroke news and a list of clubs and support groups located within the UK.
A comprehensive A-Z list of UK support groups for a range of conditions.