Canavan Research Foundation

Details of this brain deteriorating disorder with stories and images plus how to donate towards reasearch programmes. Unclaimed: Claim this business

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Canavan Research Foundation

Details of this brain deteriorating disorder with stories and images plus how to donate towards reasearch programmes. Unclaimed: Claim this business

CGD Research Trust

Funds research into Chronic Granulomatous Disorder, a rare genetic condition; also provides support to families affected. Includes information about the condition, potential treatments, and ongoing research. Unclaimed: Claim this business

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CGD Research Trust

Funds research into Chronic Granulomatous Disorder, a rare genetic condition; also provides support to families affected. Includes information about the condition, potential treatments, and ongoing research. Unclaimed: Claim this business

Climb National Information Centre for Metabolic Diseases

Provides information and support on inherited metabolic diseases to children, adults, families, carers and professionals. Contains events diary, forum, newsletter and resources. Unclaimed: Claim this business

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Climb National Information Centre for Metabolic Diseases

Provides information and support on inherited metabolic diseases to children, adults, families, carers and professionals. Contains events diary, forum, newsletter and resources. Unclaimed: Claim this business

Fanconi Hope

Promotes research into Fanconi Anaemia, a genetic disorder affecting children that causes bone marrow failure and predisposes to cancer. Offers information on support for families, plus fundraising news and details of how to help. Unclaimed: Claim this business

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Fanconi Hope

Promotes research into Fanconi Anaemia, a genetic disorder affecting children that causes bone marrow failure and predisposes to cancer. Offers information on support for families, plus fundraising news and details of how to help. Unclaimed: Claim this business

Gorlin Syndrome Group

Patient group and support network offering guidance, advice and information to patients, their families and carers whose lives are touched by Gorlin Syndrome. Features FAQ, articles and forum. Unclaimed: Claim this business

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Gorlin Syndrome Group

Patient group and support network offering guidance, advice and information to patients, their families and carers whose lives are touched by Gorlin Syndrome. Features FAQ, articles and forum. Unclaimed: Claim this business

Lowe Syndrome Association

Aims to support affected families and support research into the rare genetic condition; provides background and a FAQ, details of conferences and research, news, links, and contacts. Unclaimed: Claim this business

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Lowe Syndrome Association

Aims to support affected families and support research into the rare genetic condition; provides background and a FAQ, details of conferences and research, news, links, and contacts. Unclaimed: Claim this business

Marfan Association UK

Formed to support those with Marfan Syndrome and their families, and to encourage research and education in the condition; with a library of information and resources, and contacts. Unclaimed: Claim this business

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Marfan Association UK

Formed to support those with Marfan Syndrome and their families, and to encourage research and education in the condition; with a library of information and resources, and contacts. Unclaimed: Claim this business

Max Appeal

Supporting families affected by DiGeorge Syndrome. Contains factsheets, event listings, newsletters and fundraising details. Unclaimed: Claim this business

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Max Appeal

Supporting families affected by DiGeorge Syndrome. Contains factsheets, event listings, newsletters and fundraising details. Unclaimed: Claim this business

Nail Patella Syndrome UK

Works to raise awareness of the condition, and to raise funds to support research; includes a resource library, and contacts. Unclaimed: Claim this business

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Nail Patella Syndrome UK

Works to raise awareness of the condition, and to raise funds to support research; includes a resource library, and contacts. Unclaimed: Claim this business

National Society for Phenylketonuria

Formed to help and support people with PKU, their families and carers; includes background on the condition, advice on diet and management, other resources, and contacts. Unclaimed: Claim this business

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National Society for Phenylketonuria

Formed to help and support people with PKU, their families and carers; includes background on the condition, advice on diet and management, other resources, and contacts. Unclaimed: Claim this business

Primary Ciliary Dyskinesia Family Support Group

Provides an information service about the condition, how it is diagnosed, and how to live with it on a daily basis, with a support forum, FAQ, and how to support. Unclaimed: Claim this business

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Primary Ciliary Dyskinesia Family Support Group

Provides an information service about the condition, how it is diagnosed, and how to live with it on a daily basis, with a support forum, FAQ, and how to support. Unclaimed: Claim this business

Proteus Family Network UK

Support group for families and individuals affected by Proteus Syndrome, which causes skin overgrowth, atypical bone development and body tumours. Includes background information on the condition. Unclaimed: Claim this business

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Proteus Family Network UK

Support group for families and individuals affected by Proteus Syndrome, which causes skin overgrowth, atypical bone development and body tumours. Includes background information on the condition. Unclaimed: Claim this business

Pseudoxanthoma Elasticum (PXE) Support Group (PiXiE)

Aims to encourage, support and assist those with PXE and their family members; includes information about the condition, case histories, news and contacts. Unclaimed: Claim this business

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Pseudoxanthoma Elasticum (PXE) Support Group (PiXiE)

Aims to encourage, support and assist those with PXE and their family members; includes information about the condition, case histories, news and contacts. Unclaimed: Claim this business

Smith-Magenis Syndrome Foundation UK

Features information on family support and fundraising efforts by this charity; Smith Magenis Syndrome is genetic disability due to a microdeletion or abnormality of chromosome 17. Unclaimed: Claim this business

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Smith-Magenis Syndrome Foundation UK

Features information on family support and fundraising efforts by this charity; Smith Magenis Syndrome is genetic disability due to a microdeletion or abnormality of chromosome 17. Unclaimed: Claim this business

SOFT UK

A support organisation for parents of babies affected by trisomy 13/18, Patau's and Edwards' syndrome and related disorders; includes a comprehensive library of information and advice, with contacts and other resources. Unclaimed: Claim this business

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SOFT UK

A support organisation for parents of babies affected by trisomy 13/18, Patau's and Edwards' syndrome and related disorders; includes a comprehensive library of information and advice, with contacts and other resources. Unclaimed: Claim this business

Stickler Syndrome Support Group

Shares information on this group of genetic disorders which affect connective tissue. Includes downloadable guides. Unclaimed: Claim this business

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Stickler Syndrome Support Group

Shares information on this group of genetic disorders which affect connective tissue. Includes downloadable guides. Unclaimed: Claim this business

Telangiectasia Self Help Group

Maintains a register of sufferers of Hereditary Haemorrhagic Telangiectasia, and puts affected families in touch with one another; offers factsheets and newsletters. Unclaimed: Claim this business

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Telangiectasia Self Help Group

Maintains a register of sufferers of Hereditary Haemorrhagic Telangiectasia, and puts affected families in touch with one another; offers factsheets and newsletters. Unclaimed: Claim this business

Treacher Collins Family Support Group

Providing information about this syndrome, which casuses facial malformations and severe hearing loss. With photographs, newsletters and links. Unclaimed: Claim this business

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Treacher Collins Family Support Group

Providing information about this syndrome, which casuses facial malformations and severe hearing loss. With photographs, newsletters and links. Unclaimed: Claim this business

Tuberous Sclerosis Association

Promotes awareness and research into the Tuberous Sclerosis Complex; provides information and resources for affected individuals and families, news, and contacts. Unclaimed: Claim this business

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Tuberous Sclerosis Association

Promotes awareness and research into the Tuberous Sclerosis Complex; provides information and resources for affected individuals and families, news, and contacts. Unclaimed: Claim this business

Turner Syndrome Support Society

Offers support, advice, and information to women and girls with Turner Syndrome and their families. Includes news and contacts. Unclaimed: Claim this business

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Turner Syndrome Support Society

Offers support, advice, and information to women and girls with Turner Syndrome and their families. Includes news and contacts. Unclaimed: Claim this business

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