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BBC Health - Epilepsy
- A BBC resource site with symptoms and causes, who's affected and available treatments.
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Epilepsy Action
- Information and advice plus research and campaigns. Includes epilepsy helpline contacts.
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Epilepsy Bereaved
- Leading voluntary organisation in the UK and Internationally on Sudden Unexpected Death in Epilepsy (SUDEP) and other epilepsy related deaths. Includes newsletters, meeting information and details of support available for bereaved families.
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Epilepsy Connections
- Offers details of this epilepsy counselling service plus factsheets and newsletters. Covers the Greater Glasgow & Clyde and Forth Valley Health Board areas in Scotland.
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Epilepsy Imaging Group
- Part of the Institute of Neurology at the University College, London. Features publications, research and imaging information.
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Epilepsy Research UK
- Includes the latest news and research by scientists plus support contacts and facts.
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Epilepsy Scotland
- Providing advice and information for epilepsy sufferers in Scotland and their families.
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Epilepsy Wales (Epilepsi Cymru)
- Works to improve the lives of epilepsy sufferers, families, and carers in Wales. Includes news, publications, support groups, and contacts.
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Epilepsy West Lothian
- Features fact sheets and an outline of the services available to epilepsy sufferers and their families in West Lothian, Scotland.
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FABLE - For A Better Life with Epilepsy
- Offers a range of advice and information resources about epilepsy, and particularly about Vagus Nerve Stimulation Therapy, a treatment for those with epilepsy uncontrolled by medication alone.
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Friends of Landau-Kleffner Syndrome
- Form of childhood epilepsy which results in a severe language disorder. Information from charity to help parents and carers.
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Infantile Spasms
- Documents the treatment of a British baby boy diagnosed with infantile spasms, otherwise know as West Syndrome, a form of infant epilepsy.
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The Joint Epilepsy Council
- A UK and Ireland umbrella organisation promoting health services and education to improve epilepsy awareness. Includes events.
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Matthew's Friends
- Provides information written by families and medical specialists on the use of a ketogenic diet to help control childhood epilepsy.
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Meath Epilepsy Trust
- Centre near Godalming caring for adults who have severe epilepsy coupled with a learning and/or a physical disability. Offers information on residential and day care and on fundraising.
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Muir Maxwell Trust
- Scottish charity which aims to provide practical support to children and their families coping with severe epilepsy; includes details about free epilepsy alarms.
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National Centre for Young People with Epilepsy
- National charity for children and young people aged 5 to 25 with epilepsy and other neurological conditions. Includes brochures and details of St Piers School, a non residential special school.
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The National Society for Epilepsy
- Medical charity offering information about epilepsy, research, residential and respite care, training, treatment and facilities.
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Scottish Epilepsy Initiative
- Raises money for epilepsy research. Features itinerary of events plus details of how to get involved.
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Scottish Paediatric Epilepsy Network
- National managed clinical network; includes publications and information on local services in Scotland relating to paediatric epilepsy.
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UK Epilepsy and Pregnancy Register
- Offers pregnant women with epilepsy the chance to participate in a medical study. Includes FAQ and registration facility.
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West Syndrome Support Group
- Formed by parents of children suffering from West Syndrome, to provide support and information about the condition and its consequences for the child. Includes a guide to the condition and its treatment, with links and contacts.
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Young Epilepsy
- Focuses on improving outcomes for young people with epilepsy; includes information on events and on how to get involved.
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